International Myotonic Dystrophy Community

A family that has 3 members with myotonic dystrophy

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Bob Melvin Comment by Bob Melvin on September 16, 2009 at 9:47pm
Mr. Schwartz,just watched the reporters video,to begin, My family is so sorry for your loss.Five years ago my family was discovered to have Myotonic Dystrophy,it has affected 5 of us. I am the carrier. Grandpa,Two daughters with it, and each with a daughter with MD. My oldest does have a 4 yr old son that is clean. Casey who is my youngest Granddaughter at 7 yrs old is the 2009 MD Ambassador for Arizona. She spend labor day down at our MD Affiliate Channel 3 here in Phoenix. Very strange to watch a program i've seen all my life,w/ Jerry Lewis and now it's become a part of our lives.This disease is so strange in it's affects.Just a quick note that you are not alone. Please stay strong, our prays to you & your family. With you, Bob Melvin

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