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MDF and IMDO Come Together For A Cure
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Started this discussion. Last reply by IMDO Jul 16.

 

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Hi there!

Welcome to the IMDO Community website, a place to meet others whose lives and families have been affected by Myotonic Dystrophy in some way. This site is maintained by the International Myotonic Dystrophy Organization (www.myotonicdystrophy.org) and will be regularly updated with new events and suggested reading on the disease.

If you have any questions about this site, how to use it, improvement suggestions or concerns, feel free to write me immediately! I will try to respond as soon as I can.

Thanks,
Josh Guimond
(IMDO webmaster)
Think Fresh Technologies

Comment Wall (9 comments)

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At 4:53am on June 9, 2009, lillemor said…
Thank u Josh for starting this site. It was easy, even for me :-), to start a group in Scandinavia. Thank you!
At 2:28pm on May 15, 2009, Kathy Weibel said…
Hi Josh,
It is really cool that you started this site. Although I am a teacher I am new to the whole blogging thing. If you have any tips let me know!
At 8:51pm on April 1, 2009, Aimee Spencer said…
Thank you Josh for developing this site. Strength in numbers!

Aimee Spencer
At 3:47pm on March 31, 2009, Martin said…
thats a beauticul community site, thank u very much
At 3:30pm on March 31, 2009, Martin said…
Hi Josh, how are you doing?

Martin here from germany
At 6:54pm on March 24, 2009, Terri said…
Just a quick thank you for this community. It's nice to have people to go to who really understand.
At 9:59am on November 13, 2008, Debbie Watson said…
Thank You, for this Website. I am sure there are many people like myself who are wondering what to expect. I would like to hear from anyone.

Debbie Watson
At 6:17am on September 6, 2008, Scott said…
thanks for all your help and support over the last months to get the community site up and running! thanks for approving the grandparents group that will be a nice addition to the group...
At 4:36pm on August 25, 2008, Scott said…
Josh are you getting this test.

Latest Activity

Noelia Montaner joined IMDO's group
This group is for people in or from Florida that have been touched by Myotonic Dystrophy. Share your resources, successes, suggestions, etc.
March 2
This group is for people in or from Florida that have been touched by Myotonic Dystrophy. Share your resources, successes, suggestions, etc.
September 3, 2009
I currently live in Kentucky, but moved here from Tampa, and plan to moving back to Tampa before the year is out.
August 13, 2009
This group is for people in or from Florida that have been touched by Myotonic Dystrophy. Share your resources, successes, suggestions, etc.
August 13, 2009
July 19, 2009
lillemor left a comment for IMDO
June 9, 2009
May 15, 2009
This group is for people in or from Florida that have been touched by Myotonic Dystrophy. Share your resources, successes, suggestions, etc.
May 12, 2009
 
 
 

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