International Myotonic Dystrophy Community

All Groups (11)

  • Parents Group

    16 members Latest Activity: Mar 19 This group is dedicated to issue that parents have mainly with children of the congenital or juvenile forms of Myotonic Dystrophy

  • Eaglewood 2008 Conference Attendees

    9 members Latest Activity: May. 15, 2009 This is a group for attendees of the Eaglewood Resort 2008 Conference: Overview of Congenital/Childhood Myotonic Muscular Dystrophy.

  • Utah

    2 members Latest Activity: Jul. 19, 2009

  • Grandparents Group

    9 members Latest Activity: Dec. 28, 2009 In many cases the grandparents help in raising children that have DM or have issues they would like to discuss.

  • Scandinavia Group

    3 members Latest Activity: Mar 28 A place for discussion and to get or give support. It says that all people with DM are related and our heritage started in Russia. ?! Maybe we can get…

  • Australia Support

    11 members Latest Activity: Mar 17 This group is dedicated to supporting Myotonic Dystrophy patients, families & medical professionals in Australia.

  • Florida

    6 members Latest Activity: Mar 3 This group is for people in or from Florida that have been touched by Myotonic Dystrophy. Share your resources, successes, suggestions, etc.

  • Deutsche Myotone Dystrophie

    3 members Latest Activity: Sep. 28, 2008 Diese Gruppe ist fuer Betroffene aus Deutschland und Deutschsprachige Europaeer.

  • DM Resources

    1 member Latest Activity: May. 12, 2009 Do you have equipment or supplies you no longer need? Are you looking for equipment or supplies? This is your group then.

  • Arizona Mom

    1 member Latest Activity: Jul. 22, 2009 Family including five sons, four with MMD

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