Australia Support

Comment

Comment by Kerrie Leerson on April 9, 2009 at 4:28am

Hi Wendy,

My name is Kerrie Leerson I live inh Victoria my sister lives nearby she also has DM1 and so do her 3 daughters. It will be a big help to hear about things in Australia. We have been members of the International Mytotonic Dystrophy Association for many years now, it has been very helpful to us.

Comment by Ian & Anne on April 6, 2009 at 2:55pm

Hi
We also have found the Myotonic Dystrophy Foundation Community dedicated to helping in the fight against myotonic dystrophy.

Locally we have MDA NSW support group

These organization are a great resource and help web site like international MDC

Comment by Ian & Anne on April 6, 2009 at 2:46pm

Hi All

We wish you and all your families a very Happy Easter

Ian & Anne

Comment by Sandra Kelm on April 6, 2009 at 4:21am

Hi Wendy,
Finally a support group for australia. Well done. I look to forward to meeting other people connected with myotonic dystrophy
From Sandra

Comment by Kay Porter on April 1, 2009 at 6:48pm

Hi Wendy
How did you get my details?

My Dr says I'm an E3 - does this mean anything to anyone as I've seen no references to this grading on any of the sites I've been investigating.

Comment by Ian & Anne on March 31, 2009 at 11:14pm

Hi Wendy

We live Newcastle Australia and look forward to further discussion

From
Ian & Anne

Comment by Scott on March 31, 2009 at 12:01pm

This is a great idea to support groups in Australia!