What can we expect in the future

Hi I am new to the group but am looking forward to sharing my experiences with MD and hearing about yours.

My Grandson AJ was diagnosed with MD at birth. His Mum, my daughter in law, was diagnosed at the same time. He also had club feet. He is now 3 and spent the first year of his life in plaster both legs and then boots and bar. He now walks really well, steps have been a challenge and he does trip up easily but all in all doing well. He still is not talking but understands what is being said to him. He goes to school 2 days a week where he has intense speech therapy and physio therapy and OT. My son has been told that AJ should go to main stream school but may still need extra help within that system.

I would love to hear from anyone who has a child or grandchild with MD that has gone as far as school and how they have coped.

My big problem is that I live in Australia and my grandson is in Ireland and I feel so helpless.

Does anyone know of a support group in my area that is Gold Coast QLD

I look forward to hearing from you and becoming part of the IMDC

Vikky

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