International Myotonic Dystrophy Community

Discussion Forum (37)

Discussions Replies Latest Activity
IMDO

MDF and IMDO Come Together For A Cure

Dear IMDO Community, The IMDO Board of Directors and I have made a decision to wind down operations of the International Myotonic Dystroph…

Started by IMDO

1 Jul 16
Reply by IMDO
Kerry Meyer

Offended at salespersons using this serious web site for cheap advertising

My best friend has Myotonic Dystrophy--so does her young daughter.  This is a serious disease.  I would like to be able to log and find hel…

Started by Kerry Meyer

3 Jun 1
Reply by IMDO
Annie Biondolillo

just a question about injuries

I am a 35 y.o. with DM1. I was wondering if anyone else has had problems with injuries, and are they realated to DM1. I am asking because i…

Started by Annie Biondolillo

5 Apr 21
Reply by Maurice G. Coderre
Vikky Moody

What can we expect in the future

Hi I am new to the group but am looking forward to sharing my experiences with MD and hearing about yours.My Grandson AJ was diagnosed with…

Started by Vikky Moody

0 Feb 25
annie

A prayer request

My family has mmd including two brothers who are very fragile and we just found out they have the swine flue im scared and worried. My fami…

Started by annie

6 Jan 13
Reply by Laurelie Y Olin
Scott

Having Children when you have Myotonic Dystrophy

From: G. Gates Category: myotonic dystrophy Date: 23 Sep 2005 Time: 11:46:48 Remote Name: 65.31.72.206 Comments i would very much like to…

Started by Scott

17 Dec. 1, 2009
Reply by Jamie Cossey
Jeff & Sabrina Shaffer

Intro

Hello, My husband has Myotonic Dystrophy Type 2. Recently confirmed with a dna test. He suffers from fatigue, swallowing problems, memory p…

Started by Jeff & Sabrina Shaffer

4 Nov. 17, 2009
Reply by Jeff & Sabrina Shaffer
RyansFather

Our child

Hello, we just learned last friday that our little boy (3 weeks old) has been diagnosed with MD1. We are feeling a bit lost right now and w…

Started by RyansFather

4 Oct. 26, 2009
Reply by Richard Weston
Rosalind Moore

Gastrointestinal pain

I am 57 years of age and have 300 CTG repeats. Two of my adult children and one grand child have Myotonic Dystrophy ranging from 600 to 800…

Started by Rosalind Moore

10 Oct. 7, 2009
Reply by Rachelle Pittsley
ella

Symptoms Of MMD

I have read dozens of reported documents containing information relating to symptoms and conditions associated with MMD however I am intere…

Started by ella

0 Sep. 19, 2009

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