International Myotonic Dystrophy Community

Welcome!

On May 6, 2010 we announced that the MDF and IMDO communities will be coming together. This community site will be closing down in June so please come join the MDF community site when you have a minute: www.community.myotonic.org.

Members

  • sterlla
  • Mike Chandler
  • Louis Ashby
  • Elaine Frist
  • Ronald pPope
  • Christina Thornton
  • paul fyfe
  • jenica lovett

Groups

 

Forum

IMDO

MDF and IMDO Come Together For A Cure 1 Reply

Started by IMDO. Last reply by IMDO Jul 16.

Annie Biondolillo

just a question about injuries 5 Replies

Started by Annie Biondolillo. Last reply by Maurice G. Coderre Apr 21.

Vikky Moody

What can we expect in the future

Started by Vikky Moody Feb 25.

annie

A prayer request 6 Replies

Started by annie. Last reply by Laurelie Y Olin Jan 13.

Blog Posts

Terri

"Because of your Living Arrangement You have Not been Approved..."

What the heck does this mean??


Several months ago, after my husband had been unemployed for nearly a year and we were struggling to make ends meet I applied for Social Security Supplemental Income. I was struggling to keep working and keep our bills paid while he looked for work. I wasn't well enough to work as much as I needed to.


Being self-employed I had not the forsight to pay into SSDI (yeah I know). Anyway I applied and was told that with my diagnosis there would be nothin

Continue

Posted by Terri on April 16, 2010 at 7:23am — 2 Comments

Kim Gauntt/ Trujillo

I just want to thank you all for your help, thank you from all of the the Trujillo children an mysel…

I just want to thank you all for your help, thank you from all of the the Trujillo children an myself Kim Gauntt
Continue

Posted by Kim Gauntt/ Trujillo on February 19, 2010 at 2:01pm

Octavious Fallerson

Cast Aluminum Patio Furniture

As forged aluminum furniture can be left outside all year round and still look as good as new it's become a very well-liked selection for garden and patio furniture. It's enticing and is not subject to oxidisation as solid iron is. It's conjointly light-weight, strong and durable and this is often a necessary feature for storing and stacking. The chairs in the Tudor vary are stackable and therefore the table tops are single cast, making moving a a lot of less complicated process.


Cast… Continue

Posted by Octavious Fallerson on February 16, 2010 at 12:54am

pekelo Jerrasson

The Prestige Movie

Much of the character of film is illusion; filmmakers often conjure up great drama and misdirection to move audiences through the story journey that they would like to take them on. "The Prestige" could be a movie that is primarily based on a practitioner that conjointly utilises many of the identical techniques, the magician. Fashionable in the Victorian era, magicians would wow audiences with misdirection and sleight of hand to create the unbelievable believable. Upon reviewing this latest fil… Continue

Posted by pekelo Jerrasson on February 15, 2010 at 10:13pm

Estaban Palstoni

Wooden Play Kitchen Sets

In every kitchen, whether or not it's the real factor or the toy kitchens kind, there are utensils included. Clearly, you use them for cooking and preparing the ingredients. It is better for her to grasp where to use every utensil instead of guessing what its operate is. Nevertheless, asking someone concerning the tool is not so dangerous either. Individuals like individuals who are honest and brave enough to raise things that they do not recognize instead of assuming that they do.


Lea… Continue

Posted by Estaban Palstoni on February 13, 2010 at 7:23pm

Latest Activity

Mike Chandler is now a member of International Myotonic Dystrophy Community
on Monday
July 22
Louis Ashby is now a member of International Myotonic Dystrophy Community
July 22
Carlos Camacho updated their profile
July 7
Carlos Camacho updated their profile photo
July 7
Ronald pPope is now a member of International Myotonic Dystrophy Community
July 7
Christina Thornton is now a member of International Myotonic Dystrophy Community
July 5
paul fyfe is now a member of International Myotonic Dystrophy Community
June 28
This group is dedicated to supporting Myotonic Dystrophy patients, families & medical professionals in Australia.
June 28
jenica lovett updated their profile
June 25
jenica lovett updated their profile photo
June 25
jenica lovett is now a member of International Myotonic Dystrophy Community
June 25
Carmen Crespo is now a member of International Myotonic Dystrophy Community
June 16
Bob Gail updated their profile photo
June 10
Bob Gail is now a member of International Myotonic Dystrophy Community
June 10
iam an md sufferer who lives in northern ireland and would if at all posssible like to get in contact with someone in the same position to talk to i used to talk to my brother but unfotunatley he died in january
June 5

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